PKD remains the silent disease, despite being twice as common as multiple sclerosis and affecting more people than cystic fibrosis, muscular dystrophy, haemophilia, Down syndrome and sickle anaemia combined.
To help you stay informed about PKD and to generate awareness of the condition and its impact on individuals and families:
We publish a newsletter
We hold PKD Information Days for individuals and their families.
We provide an online support web forum
We run support groups in Richmond and Chester